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Caring for someone experiencing incontinence can be challenging. Many carers face uncertainty about managing continence issues, accessing the right products or finding time to care for themselves.
Support is available and it can make a real difference. If you have questions, would appreciate some advice, or just want someone to listen, call the National Continence Helpline on 1800 33 00 66 to talk to a nurse continence specialist. Open Monday to Friday 8am to 8pm (Vic time). This may vary by state due to time zone differences.
Choose continence products
A nurse continence specialist can help you find the right continence products to suit the person’s mobility (movement), body shape and level of support needed. Call the National Continence Helpline on 1800 33 00 66 for advice.
Learn more about continence products or search our directory of product providers.
Access funding
The Continence Aids Payment Scheme (CAPS) provides financial support for eligible people to help pay for continence products and other aids. This may be helpful for the people you care for.
View options for financial assistance including other funding schemes in some states.
The National Continence Helpline (1800 33 00 66) can provide advice if you have questions about financial support or sources of funding.
1 in 2 carers say their caring role affects their mental health wellbeing, and 1 in 3 say it impacts their ability to work full-time. Source: National Consumer Survey, May 2024
Stay connected
Looking after your own interests and relationships outside your caring role is not just important, it’s essential.
Spending time with friends and doing things you enjoy helps restore your energy.
While caring responsibilities can make this feel hard, taking some time out for yourself supports your wellbeing and helps you continue caring with compassion.
Talk to someone
Talk to someone who understands. Whether it’s a friend, another carer or a support group, sharing your experience can help manage the harder times.
Carers Australia can put you in touch with other carers.
Carer Gateway has a helpline – 1800 422 737 – and free services and support, provided by the Australian Government.
Stay healthy
Make time for regular exercise, healthy meals and rest. Protect your back when lifting.
Practise relaxation
Even 15 minutes a day can help. Listen to music, sit quietly or enjoy nature – whatever helps you feel relaxed and happy.
Take breaks
Respite care isn’t just a break for you – it’s also an opportunity for the person you care for to enjoy new experiences and meet new people.
Whether it’s in-home, community-based or residential, respite services are designed to support both carers and those they care for. Respite for a few hours or a weekend away can help you care for the longer term.
Visit Carer Gateway for more information. Carers Australia also has programs to support the health and wellbeing of carers.
Consider your emotional and mental wellbeing
Incontinence can affect mental and emotional wellbeing for the person experiencing it and the people who care for them. Feelings of frustration, grief, anxiety or even depression are common. Recognising these emotions is the first step toward managing them.
If you or the person you care for are struggling, reach out to your GP (doctor) or call the National Continence Helpline on 1800 33 00 66 to talk to a nurse continence specialist. Support is available, and things can improve.
Resources
Resources you can download. Some are available to order in print format.
This content has been reviewed by subject matter experts in line with Continence Health Australia’s established process. Read about our clinical content review protocol.